Antalya\u2019da ya\u015fayan Ayten Tolubilek\u2019in \u2018Diren\u00e7li Epilepsi\u2019 hastas\u0131 10 ya\u015f\u0131ndaki o\u011flu Eray, 5 y\u0131l \u00f6nce tak\u0131lan Vagus Nerve Stimulation\u2019 (VNS) denilen \u2019Epilepsi Pili\u2019 ile n\u00f6betlerinden kurtulmaya ba\u015flad\u0131. Aile bir ay \u00f6mr\u00fc kalan pilin yenilenmesi i\u00e7in hay\u0131rseverlerden destek bekliyor.<\/p>\n
Konyaalt\u0131 il\u00e7esinde ya\u015fayan ev han\u0131m\u0131 30 ya\u015f\u0131ndaki Ayten Tolubilek\u2019in 10 y\u0131l \u00f6nce ikiz erkek \u00e7ocuklar\u0131 d\u00fcnyaya geldi. \u0130kizlerinden Haydar, sa\u011fl\u0131kl\u0131 bir geli\u015fim g\u00f6sterirken, Eray 3 ayl\u0131kken n\u00f6betler ge\u00e7irmeye ba\u015flad\u0131. \u0130ki ayl\u0131k bir hastane s\u00fcrecinin ard\u0131ndan Eray\u2019a , \u2018Diren\u00e7li Epilepsi\u2019 tan\u0131s\u0131 konuldu. \u0130la\u00e7la tedavisine devam edilen Eray\u2019a 5 y\u0131l \u00f6nce, ataklar\u0131n\u0131 sona erdiren Vagus Nerve Stimulation\u2019 (VNS) denilen \u2019Epilepsi Pili tak\u0131ld\u0131. \u00d6mr\u00fc 5 ile 8 y\u0131l aras\u0131nda de\u011fi\u015fen pil, Eray\u2019da da k\u0131sa s\u00fcre \u00f6nce biti\u015f sinyali vermeye ba\u015flad\u0131. Kamuda 70, \u00f6zel de 100 bin TL\u2019ye ula\u015fan pilin fiyat\u0131n\u0131 ailenin kar\u015f\u0131lama imkan\u0131 olmad\u0131\u011f\u0131 i\u00e7in, hay\u0131rseverlerden destek bekliyor.<\/p>\n
“5 y\u0131ld\u0131r n\u00f6beti kesildi”<\/p>\n
Ev han\u0131m\u0131 olan Ayten Tolubilek, Eray\u2019\u0131n ikiz e\u015fi oldu\u011funu ve 3 ay sonra hastal\u0131k belirtilerinin ortaya \u00e7\u0131kmaya ba\u015flad\u0131\u011f\u0131n\u0131 s\u00f6yledi. \u0130ki ayl\u0131k bir tedavinin ard\u0131ndan Eray\u2019a \u2019Diren\u00e7li Epilepsi\u2019 tan\u0131s\u0131 konuldu\u011funu ifade eden Tolubilek, “Tan\u0131m\u0131z kondu, n\u00f6betler a\u011f\u0131r ge\u00e7meye ba\u015flad\u0131. B\u00fcy\u00fcd\u00fck\u00e7e sorunlar\u0131m\u0131z artmaya ba\u015flad\u0131. \u015eu an Eray 10 ya\u015f\u0131nda, 3 ila\u00e7 kullan\u0131yor. Bunun yan\u0131nda Vagus Nerve Stimulation\u2019 (VNS) denilen \u2019Epilepsi Pili\u2019 tak\u0131l\u0131. Bu pil g\u00f6\u011f\u00fcs kafesinde ve derinin alt\u0131nda yer al\u0131yor. 5 y\u0131ld\u0131r bu pili kullan\u0131yoruz. Pili kullanmaya ba\u015flad\u0131ktan 1 y\u0131l sonra n\u00f6betlerimiz kesildi” dedi.<\/p>\n
Ama 5-6 ayd\u0131r pilin biti\u015f sinyali vermeye ba\u015flad\u0131\u011f\u0131n\u0131 vurgulayan Ayten Tolubilek, “Telefon bataryas\u0131 nas\u0131l bitti\u011finde sinyal vermeye ba\u015flarsa, bizimde pilimiz \u00f6yle sinyal vermeye ba\u015flad\u0131. Doktorumuz pilin 1 ayl\u0131k \u00f6mr\u00fcn\u00fcn kald\u0131\u011f\u0131n\u0131 ve en k\u0131sa s\u00fcrede de\u011fi\u015ftirilmesi gerekti\u011fini s\u00f6yledi. Pili ilk takt\u0131rd\u0131\u011f\u0131m\u0131zda hi\u00e7 para \u00f6demedik. \u015eimdi dolar\u0131n y\u00fckselmesinden dolay\u0131 fiyat\u0131 y\u00fckseldi. Yakla\u015f\u0131k 70 bin TL diyorlar. \u00d6zel de tak\u0131l\u0131rsa bu fiyat 100 bin TL\u2019yi buluyor” dedi.<\/p>\n
\u0130ki \u00e7ocu\u011fu oldu\u011funu ve asgari \u00fccretle ge\u00e7indiklerini anlatan Tolubilek, mevcut miktar\u0131 kar\u015f\u0131lamalar\u0131n\u0131n imkans\u0131z oldu\u011funu kaydetti.<\/p>\n
“N\u00f6betli g\u00fcnlere d\u00f6nmek istemiyoruz”<\/p>\n
Eray\u2019\u0131n yeni piline hemen kavu\u015fmas\u0131n\u0131 isteyen ve bu noktada devlet b\u00fcy\u00fckleri ile hay\u0131rseverlerden destek bekleyen Ayten Tolubilek, “Bir tek benim \u00e7ocu\u011fum de\u011fil, pili bitmek \u00fczere olan ve bu pillerin yenilenmesi gereken 35 \u00e7ocu\u011fumuz var. Bu pil yenilenmezse \u00e7ocuklar\u0131m\u0131z yine a\u011f\u0131r n\u00f6betler ge\u00e7irmeye ba\u015flayacak. Yaralanma ve zarar vermeler meydana gelecek. Biz n\u00f6betsizli\u011fe al\u0131\u015ft\u0131k. N\u00f6betli g\u00fcnlere geri d\u00f6nmek istemiyoruz. Tahta gibi d\u00fc\u015f\u00fcn\u00fcn onun gibi \u00e7ocuklar\u0131m\u0131z\u0131 esnetip, koltu\u011fa alam\u0131yoruz. Hayati bir cihaz bizim i\u00e7in” ifadelerine yer verdi.<\/p>\n
“Her \u015feyi Eray i\u00e7in istiyorum”<\/p>\n
Eray\u2019\u0131n pilinin yenilenmesi i\u00e7in 1 aydan k\u0131sa s\u00fcresi kald\u0131\u011f\u0131n\u0131 dile getiren anne Tolubilek, “Eray\u2019\u0131n ikizi, \u2018Anne pil yenilenmezse karde\u015fim \u00f6lecek mi?\u2019 diyor. Bu c\u00fcmleler bir anne olarak beni \u00e7ok \u00fcz\u00fcyor. Devletimizin bunu kar\u015f\u0131lamas\u0131n\u0131 istiyorum. E\u011fer olumsuz olursa hay\u0131rseverlerden yard\u0131m bekliyorum. \u00c7ocu\u011fumun pil masraflar\u0131 kar\u015f\u0131lans\u0131n, biz kendimiz i\u00e7in bir \u015fey istemiyoruz. Her \u015fey o\u011flum i\u00e7in” dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"
ANTALYA\u2019DA YA\u015eAYAN AYTEN TOLUB\u0130LEK\u2019\u0130N \u2018D\u0130REN\u00c7L\u0130 EP\u0130LEPS\u0130\u2019 HASTASI 10 YA\u015eINDAK\u0130 O\u011eLU ERAY, 5 YILDIR VAGUS NERVE ST\u0130MULAT\u0130ON’ (VNS) DEN\u0130LEN ‘EP\u0130LEPS\u0130 P\u0130L\u0130\u2019 \u0130LE N\u00d6BETLER\u0130NDEN KURTULMAYA BA\u015eLADI. A\u0130LE B\u0130R AY \u00d6MR\u00dc KALAN P\u0130L\u0130N YEN\u0130LENMES\u0130 \u0130\u00c7\u0130N HAYIRSEVERLERDEN DESTEK BEKL\u0130YOR.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[14,20],"tags":[40771,17404,109727,15204,27108,12985],"class_list":["post-1366778","post","type-post","status-publish","format-standard","hentry","category-saglik","category-turkiye","tag-epilepsi","tag-cigligi","tag-erayin","tag-hastasi","tag-pil","tag-yasindaki"],"_links":{"self":[{"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=\/wp\/v2\/posts\/1366778","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1366778"}],"version-history":[{"count":0,"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=\/wp\/v2\/posts\/1366778\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1366778"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1366778"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erzhaber.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1366778"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}